CRPD COLLOQUIUM: DEVELOPING CULTURALLY APPROPRIATE LIFE STORY WORK PRACTICE WITH DEAF SIGN LANGUAGE USERS LIVING WITH DEMENTIA AND THEIR CARERS
Emma Ferguson-Coleman from the University of Manchester works with the Social Research with Deaf People Group and the Dementia and Ageing Research Team.
Emma’s presentation will focus on the specific needs of Deaf citizens living with dementia in the UK. This research represents a cultural linguistic minority group that uses sign language, as opposed to those who are hard of hearing, or whom have lost their hearing later on in life. Deaf British Sign Language (BSL) users consistently experience unequal access to health and social care provision in the UK, because their language and communication needs are inadequately met and their cultural identity not recognised by the mainstream. Inequities of access, service provision and effective outcomes can be exacerbated when Deaf people live with dementia.
Emma will share findings from work completed in the United Kingdom with Deaf people with dementia and their families. The study took place within the Deaf with Dementia Life-Stories work programme as part of the five year (2014-2019) multi-site ESRC/NIHR funded Neighbourhoods and Dementia study. Emma completed Deaf-led data collection in BSL by facilitating two focus groups and six interviews. It was established that Deaf carers are uniquely placed to support their Deaf family member with dementia, as they use innovative visual methods in which to engage conversations. However, challenges in accessing appropriate support and care after diagnosis superseded the positive construction of cultural life-story work. These issues will be discussed with potential solutions offered.
Date: Thursday – October 3, 2019
Location: School of Social Work, 2080 West Mall (Corner of University and West Mall), Room 200
CRPD COLLOQUIUM: DEMENTIA AND DIGITAL STORIES
Lisa Williams is a research fellow in Nursing at the University of Auckland and a member of the Te Arai Palliative Care and End of Life Research Group [https://tearairesearchgroup.org].This group conducts multi-disciplinary bicultural research using creative social research methods to inform practice, policy and teaching in palliative and end of life care both nationally and internationally. Dr. Williams has been creating research-based digital resources for training health care professionals and students in the area of dementia care. She says: “The perspectives of people with dementia are essential for supporting ‘dementia friendly’ neighbourhoods and communities. This presentation will explore the benefits and drawbacks of using digital stories in the form of short videos to convey the experiences of people with dementia.”
Date: Tuesday – June 18, 2019
Location: 2211 Wesbrook Mall, UBC School of Nursing (Third Floor of UBC Hospital, Room T-206)
DEMENTIA WITHOUT BORDERS
The CRPD and the University of Washington Memory and Brain Wellness Centre welcome you to join us in celebrating at our first public festival bringing together persons with dementia, friends and family, and all who support a dementia-friendly community. This free event is to foster greater connections between our two countries though a fun-filled day of music, dancing, art, poetry, and food.
Date: Wednesday – July 3, 2019
Time: 11:00 AM – 2:00 PM
Location: Peach Arch International Park (border between Blaine WA and Surrey BC). No passport required and transportation is available.